Don’t Mind My Voice

This year brought huge changes in my life – in my families lives. The biggest change for our family was a move across the country from Texas to California. For me the biggest change was becoming part of a larger community. Not a community connected by streets, courts, high school football games and the local Starbucks – a community connected by something much stronger – love, support, understanding, and a common goal – to end diabetes.

Don’t misunderstand me – the move from Texas to Cali was life changing. At times before and after the move I thought it would do me in. Luckily I have amazing kids who are resilient, a husband that devotes himself for providing what is best for all of us and again,  – a larger community of people in the DOC (diabetes online community) that helped me feel less alone.

This months DSMA Blog Carnival asks bloggers to write a 2012 in Review Post. click this link to learn more on how you can participate.

“Take a moment to reflect on diabetes in 2012 – on a personal level, on a community level, on a technological level, anything you can think of.  What things stand out to you the most?  What did 2012 and Diabetes mean to you?  You can even take the challenge one step further, and post a collage of your Year in Diabetes!” 

I have attempted to write this post a few times. It either got too wordy or didn’t share enough. Thus I thought I’d make a vlog. How difficult could that be? Well it was a lot more difficult than I anticipated. Technological difficulties using my photobooth application on my apple computer left me frustrated – it looked like a poorly dubbed kung-fu movie. After I finally got a video recorded and tried to load it was told it exceeded the maximum size for my blog. ARGGGG – here is where YouTube comes in.

Warning – I write like I talk and I talk like I think – thus I ramble.

Thanks for checking my first vlog out. HERE

Not You Too

Checking out of the grocery store today the cashier commented on the 6 packages of juice boxes I had, asking if they were for a school party. I don’t normally volunteer Diabetes information – wait yes I do. Anyway I replied that I had two kids with Type 1 Diabetes and  juice is medicine in my house. The young man bagging my groceries asked me when my kids were diagnosed. I shared their ages and he shared he was diagnosed when he was 13 months old. Wow that’s young. I noticed he wasn’t wearing any emergency alert identification and pointed it out. He said his always broke so his mom stopped buying them. That made me sad. Then I asked if he was pumping. He said “No I do the daily shots, my Endo says my diabetes isn’t bad enough for a pump.” HUH WTH? An endo said this? A person with Type 1 believed this to be true – that the pump = the bad diabetes? Up till this encounter earlier today I thought only non-diabetes educated people viewed the pump as a last resort for the bad diabetes. If we can’t educate PWD properly how can we hope to educate those with no connection to diabetes properly.

I didn’t (or hope I didn’t) let on that his words stung. I just told him that both my kids use insulin pumps because it makes managing diabetes easier for all of us but that many PWD prefer MDI. I told him that I believe it is about personal choice rather than good/bad diabetes management.

I was just surprised to hear that an endocrinologist would tell a patient that an insulin pump is prescribed to patients with poor control or the “bad” diabetes and also that a person with diabetes would believe it.

 

Hi Ho Hi Ho It’s off to Wisconsin We Go

I am participating in the Wego Health National Health Blog Post Month Challenge.

Todays prompt suggestions were:

News-Style Post – seriously? I can barely put a coherent thought together in first person. Although I’ve read a number of News-Style posts today that were fabulous. See a couple of them Here and Here.

I grabbed a prompt from the Bonus list for today.

Write about what it’s like to travel with ‘your’ condition.

On Friday my dear daughter and I will hop a jet plane to WI for my older sisters 40th birthday celebration. It will be a quick trip Friday – Sunday but at least I get to see my sister and Sweetstuff gets to see her twin cousins that are only 2 days younger than her. We are very excited.

Traveling with diabetes isn’t the easiest task. There are so many variables to consider.

Packing – how much diabetes crud to take

  • infusion sets
  • insulin, pump cartridges
  • batteries {yes there are batteries in WI but the pump or meter might go low in route}
  • test strips
  • glucose tabs
  • ketone strips
  • glucagon emergency kit
  • extra meter
  • fast carb snacks
  • carb free snacks
  • juice boxes {yes TSA loves this}.

Adjusting pump settings for extended sitting while in the air – how far in advance do we set temporary basal rates?

Since I am leaving Sugarboy at home with daddy I also need to consider what to have prepared for them. I will need to do an infusion set before I leave since my little guy prefers I do them rather than his dad. I’ll need to be sure an extra glucometer is in daddy’s car in case they leave without Sugarboy’s meter (happens more often than he’d like to admit).

Once we are packed there is the ordeal at the airport to deal with. TSA rules have changed many times since the kids started pumping. It used to be the kids had to leave the pumps on and walk through metal detector, thus alarming it and then the kids and I would get pat downs. Then we started removing pumps prior to walking through the metal detector and asking the pumps to be hand inspected which involved some type of swabbing with a small square of cotton. There have always been some TSA agents who try to insist that the pumps can go through the xray machine – NO THEY CANT. Most recently I had my kids take the pumps off at SFO and asked the TSA agent to hand inspect them. This resulted in a full pat down for me and full inspection of my luggage. Then they wanted to put the pumps in this weird machine (looked like a centrifuge) I DONT THINK SO! 35 minutes later of arguing we left TSA behind but only after TSA told me I should leave the pumps on the kids since they are under 17 they wouldn’t even get a pat down. Moral – every airport is different.

The juice boxes are treated differently at each airport too. Sometimes I’m allowed 2 for each kid, sometimes I’m allowed 4 each. Sometimes TSA agents want me to open a juice box – HUH?

Traveling with diabetes can be a real pain in the finger* but with proper planing and lots of “roll with it” attitude it isn’t terrible.

Note the sign above my dear daughter. This is in the Milwaukee airport.

Wordless Wednesday Take 2

My Sweetstuff with Dakota (Her American Girl Doll)

Dakota is wearing a pump and pump pack sent to me two years ago from a pharma company – normally comes on a stuffed monkey but the company was generous and sent me just the pump and case for Sweetstuffs doll.

Love that my dear daughter does not think of herself  too old to play with dolls. Of course I wasn’t allowed to post to instagram where many of her friends follow me.

*Yes Im that cool ‘mom’.

 

Backseat Driver

A twitter friend @Nitacure4t1d has joined the blogosphere at NitaCure. She wrote her first post yesterday Canada Day in regards to taking a road trip with her son who has Type 1 Diabetes. Comments on my blog give me all sorts of warm fuzzies so I do try to comment on other blogs frequently (do to others as you would have them do to you). As I began the second paragraph of my comment I realized I was hijacking her post with a post of my own. That is not good blogosphere etiquette (well I assume it is not good blogosphere etiquette – I don’t think there is a book on the subject but there should be – I also like saying blogosphere btw – it is a fun word). Thus I deleted my long windy comment and instead offered her the kudos she deserves for her first post. Yet I still had so much to say about road trips and diabetes – thus here we are.

Diabetes does not like road trips. I can attest to that. I am a road trip woman, partially because flying or even the idea of flying causes me huge panic attacks even with a double dose of Xanax, but also because I love to drive. I love the freedom of detours, Starbucks on demand and bathrooms that are larger than a coffin.

We have taken many road trips since D moved in. Our first road trip after Sugarboy was diagnosed was to the annual Children with Diabetes International Friends for Life conference in Orlando FLorida. This was 5 months after Sugarboy was diagnosed. It is an 18 hour drive from Austin Texas to Orlando Florida. We have made this drive 3 times. We never went directly to Orlando – we would stop by my most favorite place on this wonderful planet – Destin Florida (white powder soft sand and turquoise water – my happy place). Sorry digressed….

During that first road trip Sugarboy was still using multiple daily injections (one shot of long lasting Lantus and 4-6 shots of fast acting Novalog for meals, snacks, corrections). We were very new to diabetes and didn’t realize the toll long road trips would take on Sugarboy’s sugars. Sitting for extended periods of time raise blood sugars – it is that simple. (Did I just use the word simple in relation to Diabetes? I should be fined) Sugarboys sugars were high despite intense carb counting and free foods (no carb foods). With injections it is not possible to adjust basal insulin – you can increase the dose of long acting insulin but it is increased for an entire 24 hour period. That is not was we needed – once we arrived at the beach the boy was running around like mad playing in the surf – no additional basal needed for that. Basically Sugarboys sugars were a mess the days we were on the road but then also while on our vacation and at the conference (conference blood sugar craziness was likely caused by a such huge changes in our routines).

All our future road trips have been with insulin pumps which makes reducing the road trip highs a bazillion times easier since we can adjust basal rates to provide additional insulin for the time leading up to and during long drives which result in long periods of inactivity. Insulin pumps also allow us to decrease basals while enjoying beach time and theme parks since less insulin is required to increased activity. It’s been 5 years now and we are not experts by any means but we are getting better.

After reading my friends post and thinking about the travel that is in our near future I decided to search cyber space for more advice regarding road trips and traveling with diabetes. I found these sites to be very helpful.

How Stuff Works

Fit4D

While searching cyber space for tips for road trips with diabetes I stumbled on this little gem: controlling Diabetes Is Like Taking A Road Trip. It is a wonderful post written by Karen Marschel for KM Nutrition @KMNutrition on twitter. Oh the things we will find when we google. (I am not endorsing any products shared on Karen’s website – I just really liked her post. I have not fully explored her website otherwise – although I will likely add it to my list of things to do.)

 

Pumping Air

Last week was Diabetes Camp Week! It was AWESOME.

My kids blood sugars were the best they have been in months. Why is that?  I didn’t change basals (amount of insulin that is continuously given via the insulin pump) or I:C ratios (Insulin to Carb ratios ex. 1 unit insulin for 14 grams carbs) or ISFs (Insulin Sensitivity Factors – amount of insulin given to correct a high blood sugar)? Yet their BSs stayed between 78 and 176 while at camp. That mystery is for another post. This post I want to share a problem I hadn’t run into before – well I had but I didn’t know why until now.

At camp on Thursday Sugarboy’s tubbing became detached from the cartridge of insulin in his pump. He didn’t know how long it had been detached before he realized it. Someone (he can’t remember if it was his group leader or a medic) told him to just plug it back in. Don’t get to upset with the person – I have done the same thing.

After camp we went to a water park. We ate dinner before and Sugarboys BS was 227 so he dosed for his dinner and corrected. An hour or so later he wanted nachos for a snack. He had just eaten and dosed so I let him dose for his nachos without checking his BS. At home he was 358. I thought we had not dosed enough for the nachos so I corrected him. At bedtime he was HIGH GLUCOSE. Huh?

 

I thought perhaps his infusion site had gone bad so we put a new one on. His pump said he still had 46 Units of insulin available and it was late so I decided against a new cartridge of insulin and to use the old tubbing until I replaced the insulin in the morning.

Thus, I ran a prime (push insulin through tubbing to remove any air). While priming I noticed a bit of blood come out of the tubbing. Huh?

Seeing the blood I decided to remove the cartridge to investigate. Huh?

There was no insulin in the cartridge – just 46 units of air. Thus after the insulin that was in the tubbing was used for dinner, nachos and attempted corrections my boy wasn’t getting any insulin. Turns out while the tubbing was disconnected insulin drained from the cartridge (makes perfect sense). Thus plugging back in without priming and checking the cartridge is dangerous. I did share the occurrence with the medical director of the camp and she assured me that she does instruct the medics to send the camper to the infirmary so proper procedures are followed. It was an honest mistake that even I have made. Which explained why in Feb of this year I found a cartridge filled with air when I thought Sugarboy’s site failed. At that time I didn’t make the connection that the disconnected tubbing caused the air filled cartridge – thus I called Animas and explained the air filled cartridge and they believed the cartridge was faulty and sent me a new box of cartridges.

New cartridge of insulin was installed with new tubbing and site and Sugarboy was within normal ranges in three hours. He was negative for ketones. All was right in the world of diabetes (at least in our home).

10 Things THEY couldn’t live without

10 Things THEY couldn’t live without

Day 13 Health Activist Writer’s Month Challenge

Todays prompt is to write a list of the 10 things you need (or love) most. Since this blog is intended to be mostly about being the parent of children with diabetes my list will not be what I need, it will be what they need.

Starting with the obvious:

  1. Insulin – well duh – sorry that was snarky but it is obvious. Without insulin my kids wouldn’t last long even if I put them on the starvation diets used prior to 1922 and the discovery of insulin.
  2. Method of injecting insulin – yes obvious but you would be surprised as to how often my kids or I get asked “isn’t their a pill”. Perhaps the folks asking that have heard that some people with diabetes take a pill to help their body utilize insulin. That is a true statement, I know of a number of people with diabetes or pre-diabetes that are not insulin dependent but my kids are have Type 1 diabetes so a pill will not provide all that their bodies require. Insulin is a protein so it can not be ingested, it would be digested by the stomach and intestines rather than absorbed into the blood to help unlock cells to allow glucose to be burned as energy. To inject insulin one needs an insulin pump or insulin syringes.
  3. Pump paraphernalia – Both my kids are pumping insulin so in addition to needing the actual pump they require insulin cartridges (small reservoirs that are filled with the insulin and housed in the pump). They also need infusion sets – a thin tube that connects to the insulin cartridge inside the pump as well as to a cannula that is inserted into the subcutaneous tissue with a funky UFO looking device (thanks to Kerri S @sixuntilme for the validation of my thoughts). I often imagine beating ignorant individuals (that refuse to be educated) with said tubing.
  4. Glucose Meter – The best way for me to help my kids to avoid future complications is to check (I try not to say ‘test’ as it implies pass or fail) their blood sugars at least 10 times a day (which is what the insurance companies deem appropriate – although my kids generally test about 12 times a day). Thus 4a would be the tiny test strips used to collect the blood sample. I think I read somewhere that the test strips cost about $.10 each to produce but cost $1.00 each (without insurance). Pisses me off.
  5. Fast Acting Carbs – My kids need instant access to fast acting carbohydrates in case of low blood sugars. At any given time my kids will have packages of smarties, fruit roll-ups, juice boxes, glucose tabs, or small tubes of frosting on their person or in their diabetes pack (currently using a case produced by REI intended to hold a handheld game system).

Moving to less obvious but not less important

  1. Hugs – my kids need hugs. They need hugs when their blood sugars are over the rainbow and they are cranky, frustrated and hating diabetes. They need hugs when their blood sugars are plummeted downward taking their ability to function normally with them. They need hugs to celebrate a success. They need hugs when the new infusion site stings like a bitch. They need hugs when an unDeducated (un diabetes educated) person tells them they shouldn’t or can’t do something or eat something – or worse when a narcissistic (although sometimes well meaning) unDeducated person shares the story of how their grandma had to have both legs amputated because of diabetes. They need and deserve hugs for all the times they try.
  2. Laughter – many say (and I agree) it is the best medicine. Finding humor in all that it diabetes makes it sting less. My sweetness has only recently begun to understand the humor in me saying in public “you better be high with your attitude” (not sure if that is a good thing). We make note of the times the kids are bstwins (both check to find the same exact number – happens more than you might guess). We draw eyes and scales on the little twisty paper that protects the adhesive on the infusion sets, meet George George . We giggle that Sugarboy never fails to have to go pee just as I am about to squeeze the sides of the quick set to place an infusion set. There is opportunity for laughter everywhere and we take advantage of it.
  3. Food – ok so this one is obvious too, however I don’t mean it in its most basic sense. I mean that my kids can eat everything their peers can. I know just because they can doesn’t mean they should and so I do try to limit the foods that will cause an ugly number. I let my kids go trick-or-treating and bring home pillow cases full of wonderful. (I actually encourage it – how else am I going to get a two months supply of Reese’s peanut butter cups?) The thing about all the holidays that involve candy candy and more candy is they forget about it after about a week. We put all the candy in a large container and the kids can choose a piece or two each day. This lasts about a week – I move the container slowly from a clearly visible spot to a less and less visible spot as the week goes on. By the end of the week the container is relegated to the top shelf of the pantry. It will stay there until the next holiday usually. We eat cake at birthdays and stop at Baskin Robbins a couple Tuesdays a month (kids cones only $1). I still make potatoes, rice and pasta but try to limit it to only a quarter of their dinner plate. We don’t use food as a reward or a punishment. Food is food and I don’t see the point in giving it any additional role.
  4. Diabetes Camp – This one truly should be part of the obvious as well. My kids (all three of them because diabetes effects siblings too) attend a day camp each summer called Camp Bluebonnet – Children’s Diabetes Camp of Central Texas. It is a week of fun in the sun (gets to be above 100 degrees here), laughing and learning with other children with diabetes, finding the courage to scale tall rock walls and fly down zip lines in the blink of an eye, playing in mountains of foam, competing in silly games that more times than not include dawning over sized clothing soaked in ice water. It is a week of feeling normal and meeting new besties. My daughter also attend Texas Lions Camp – a week long sleep away camp about 3 hours from our home. She will tell anyone and everyone that the weeks she has spent at TLC are the very best weeks of her life. I am a nervous wreck those weeks – playing a game of ‘wheres waldo’ while searching the 300+ photos that the camp posts on FB each day just for a glimpse of my Sweetness. This year my Sugarboy is old enough to also attend – I may start drinking that week.
  5. Friends – we all need friends and my kids are fortunate enough to have a few that aren’t just friends. They are other children with diabetes that ‘get them’. They also each have a few non-D friends that also get them and can identify a low or high blood sugar sometimes before my kids can feel it themselves. We love those friends.

So there it is the list of 10 things my kids need most – the second set of 5 meet my needs too.

    Pump Hiatus

    Woo hoo! (Feeling excited but maybe guilty too)
    In early February my dd “sweetstuff” decided she wanted a break from her insulin pump. Trying to convince me she used the idea that she would have better control with shots because she wouldn’t have the freedom to eat whatever/whenever. As a mom (who knows everything) I knew it was more about her feeling different at school and the fact that an insulin pump does not go well with skinny jeans and tight ts. I didn’t call her out on it though. I supported her choice to encourage diabetes ownership.
    For the last 5 weeks she managed her diabetes with MDI (multiple daily injections). She has done fairly well overall. Although, she treated the shots like she did her pump – she had no qualms about dosing for snacks in between meals. (So much for better control due to decreased snacking) She purchased an application called “RapidCalc” from the app store. http://www.gilport.com/rapidcalc/index.html
    Honestly it was a great application. We programmed it based on her carb ratios, insulin sensitivity factors, and target blood sugars. It basically did everything her pump did except deliver the insulin of course.
    The problem was of course the Lantus (long acting basal insulin). She started off with 10 units and hovered in the upper 200s each night. We increased to 11 units and still she was in the mid 200s. We increased to 12 units and that put her in the 60s. We were using the Lantus pen which only dosed in whole units. No problem, we switched to syringes and dosed 11.5 units and she was in the upper 100s low 200s. (We used each dose for 4-5 days prior to making a change)
    Using the Lantus worried me – flashbacks to the months post diagnosis for both my kids left me in a constant state of worry. Both of them would be in the 40s for 4-6 weeks after diagnosis at the wee morning checks despite constant reductions in Lantus. (Honeymoon??)
    The pump was such a blessing for both of my dear children. Being able to reduce/increase basal as needed made a huge difference in control and allowed for much needed sleep for me. While using Lantus I checked blood glucose multiple times during the night – never allowing myself more than 3 hours of sleep in between checks.
    So a few nights ago after reading a post by Kerri S. www.sixuntilme.comregarding a stranger in the airport in which Kerri discussed her pump, my dear Sweetstuff decided she wanted her pump back. It likely also had something to do with me suggesting she might actually have better control using her pump and thus decrease the chances she would develop complications much later in life. (Disclaimer – I know a number of pwd that successfully use MDI and have excellent A1Cs – without the extreme highs or extreme lows but those that I know are also very disciplined in that they eat low carb meals, don’t snack, and exercise daily.) That does not describe my daughter. Like most 12 year olds she loves carbs, hates exercise and loves to snack too.
    So that evening she said she wanted her pump back. We had already dosed her Lantus that night so I suggested she sleep on it and think more about it in the morning. I didn’t want to feel as though I coerced her.
    The next afternoon she asked if I had figured out her basal programs so she could start the pump again. I actually had not. I had written them down when she gave the pump up – knowing that after 24 hours of being off the pump would reset itself and I would lose the programs. In my lack of organization I had misplaced my note (is that irony? – I have the hardest time understanding what is actually ironic – Alanis Morissette got me all confused with her song)
    Late yesterday I found my note. She had asked me a number of times in the interim if I had found it. I replaced the pump battery, programmed it (wishing I had loaded insulin first so the dang thing would quite alerting me to lack of priming and causing me to scroll through the menu options a half dozen times). I loaded insulin and waited until her normal Lantus dose time to invite her to put an infusion set on. She seemed excited – like she had cleaned her room and found an old toy that she had misplaced and forgotten about.
    We put on the infusion set and connected the pump. Then we both realized that the last low profile clip we had was broke (those dang things last just over the 3 month warranty mark). We did have a rotating pump clip. (I actually have 4 – we were asked by Animas to try them and report back – I really should do a blog post regarding them.) She was not excited about the rotating clip (reasons to be explained in future blog post). Thus, she chose to wear her spibelt instead. (Love our spibelts. http://spibelt.com/?gclid=CMqIyLb08K4CFQK9tgodVgT3Kgfor those that are not familiar with spibelt – they do have diabetic specific belts that have a pass-through hole for insulin tubing.
    Sweetstuff’s bedtime check was 168 but she had eaten a fudge bar an hour or so earlier and still had insulin working. Her 3am check was 104 (woot woot) and her morning check was 122. I could likely increase her 3am basal dose by a bit but I’ll wait a few days to be sure.
    I feel so much calmer with Sweetstuff back on the pump. I hope she doesn’t regret her decision tomorrow when she returns to school after the last week off (spring break). I also hope she doesn’t resent me and feel coerced back on the pump.

    WTH

    WTH – my most frequently asked question.

    I’m still new at this blog thing – wish I could say I will be as diligent as my favorite bloggers and blog everyday but alas I am a mom of 3, wife, substitute teacher and not very organized regarding any of the above mentioned roles. I started this post yesterday morning and saved it when duty (also called laundry called) – the evening discussed was not last night but the night prior.

    At 8pm (bedtime for my two elementary aged kiddos) we checked my dear son’s BG. He was 242 – huh? When attempting to correct his BG with insulin it was discovered that he had not reattached his pump after his shower an hour prior. My dear husband asks him to retrieve his pump from the bathroom upstairs prior to having a cup of milk before bed and all of a sudden everything hurts. His hair huts, his head hurts, his legs hurt, etc. No mention of these alignments while watching TV before bedtime was announced but now it seems his entire little body is on strike. He (ds) decides to skip the milk and requests to be carried up stairs. I holler up a reminder to my husband to attach pump and provide a correction (insulin dose). I go up a few minutes later to check that they brushed teeth (my question – “did you brush your teeth?” Nearly always is an answer in the negative at which time I make my boys get out of their beds and brush their teeth – at least those that they want to keep.) and tuck them in for the second time really since I nearly always give hugs and kisses prior to asking the teeth question. Thus a second round of hugs and kisses is needed – likely their plan.

    My ds with D talked his way into my bed because his legs and head hurt. My husband and I were not going to bed but we let him lay down in our bed. At 10pm I came up to go to bed. Checked my dear daughters BG and she was right as rain (YES!), then on to my dear son. When I came into the room I could hear him grinding his teeth. That isn’t a good sign – he always grinds when he is high at night. He was 432. Thus the WTH?? He should have been in the 100s. Check the history on his pump – no correction – oops daddy forgot. But why 452? Why not just still be in the 200s? I will likely never fully understand where some numbers come from. I get the sky high numbers that come from a missed bolus – yes we have missed doses of insulin, I get the high numbers that come with sick days – dang illnesses. I get the high numbers that come from infusion sites gone bad – lack of organization leads to sites left on for more than the recommended 3 days. I get high numbers due to the beginning stages of puberty in my dd – Lord help me when we are in the thick of puberty. I get the high numbers caused by eating high fat/high carb meals like pizza – although we are getting better at combo bolusing. What I don’t get are the numbers that seem to have no rhyme or reason.

    Thus, alarm was set for midnight. Midnight check resulted in in 231 so my ds was going down but n additional correction was needed. Alarm set for 2am. 2am check came up with 107. Checked dd at the same time and she was within range so I canceled the regularly scheduled 3am check and took pleasure in the following 4 hours of uninterrupted sleep.
    I know not all parents of cwd get up every night, and not all diabetics themselves get up to check every night. I know many parents and and patients use CGMs (continuous glucose monitors) that alert them to rogue blood sugars. I pass no judgement on any of the decisions regarding night checking. I don’t always check at night. Although the nights that I don’t have at least one if not multiple alarms set are few and far between. Sometimes the moon and stars are aligned so perfectly that I allow myself longer uninterrupted sleep. On those nights I don’t go to bed till midnight, both kids must have numbers within range, no IOB (insulin on board) and it must have been a fairly average day with no super long periods or sitting or overly strenuous activity. You can imagine how often all the stars and the moon align in this fashion for not just one Type1 but two. Why do I set alarms and get up so often – because I feel better about them and their diabetes knowing they are safe. Knowing that if a blood sugar is high 200+ I can correct it and help keep their A1Cs (yes I know not a perfect indication of diabetes care – but a good indication of future possible complications if regularly too high) more in check. I recently spoke with a parent whose son is nearly an adult. He was diagnosed as an early teen. Her doctor told her that night time checks were only necessary the first couple weeks post diagnosis. Her son’s A1C varies between upper 7’s and low 10s. What a wild roller coaster. Yes puberty is playing a large role in the crazy numbers but still – I hope my kids will not be so wacky.
    One day I hope to get a CGM on both of my kiddos. Right now the fight is ugly. Neither of them want to wear or carry an additional device. They already wear their pumps and take their diabetes packs (meter, poker, strips, juice, extra batteries, extra lancets, and fruit roll ups) every where they go. My dd who is now 12 frequently complains about the profile of her pump (although I believe Animas has the lowest profile). She wants her skinny t’s and her skinny jeans to be seamless – not possible with a pump attached thus wearing the Dexcom (which we purchased and has collected dust for 2 years) is not a happy thought for her.
    Well this has been a babbling mess. Thanks for baring with me as I learn how to blog effectively.