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7 Responses to Contact Me

  1. Tim M. says:

    Hello,
    I saw your blog about waiting for the FDA to approve the Dexcom G4 for your daughter. I am confused as we were not told anything about FDA approval problems. My daughter had the older Dexcom for maybe 2 years now? But a few weeks ago my wife called and Dexcom rep said we could get the new one (Dexcom G4). I don’t know the details of what they discussed. But basically we have Aetna (I don’t know the plan) insurance and the rep said the new device would only cost us like $84? Plus another $84 for 90 days of sensors. We live in PA near Philly (doubt that matters).
    So anyway the newer one came in about a week ago and my daughter has been using it and really likes it much better. (I didn’t see the bill yet but assuming it will be $84 + $84 as promised.) She had not been wearing the older one all the time because she didn’t like it and so we only pushed her if we were making changes on her bolus/basal rates and wanted to track it better to see how the change worked (or didn’t).
    And with the new one – the transmission range is longer (docs say 20 feet?) so we can keep the receiver in our bedroom at night (small house so our room is right next to our daughter’s room) and the alarm on it is louder then the older style. And the Dexcom Studio software that comes with it is nice. I don’t know if that worked with the old one or only the new one? But worth installing and it hooks up with a USB connection so pretty easy.
    So anyway maybe try calling Dexcom again and see if you can get it now? BTW – My daughter is 11 years old. Diagnosed on her 8th birthday.
    Good luck with it and everything else.

    • Christina says:

      Hi Tim. Thanks for the comment.
      It is true that the G4 is not yet approved for under 17 by the FDA. It is also true that for most pediatric endos and insurance carriers that it doesn’t matter. Just because it isn’t approved doesn’t mean kids can’t use the G4 – it is prescribed ‘off label’ by endos and thus covered by insurance carriers. Our issue is our insurance provider (who is also the employer of our doctors) has a strict policy against prescribing or paying for anything that is ‘off label’. Until the FDA approves the G4 for under 17 we don’t have a chance of getting it. Once it is approved our insurance provider may or may not include it on a short list of approved diabetes medical devices. Until it is approved by the FDA for under 17 we don’t have any way of arguing the point with our doctors or insurance providers because of the iron clad policy of no ‘off label’.

      two of my three kids with diabetes participated in the G4 trials to help get it approved by the FDA. They both wore two sensors and carried two receivers for a week. One receiver for each child was blind (we couldn’t see results although still needed to calibrate it). The other receiver gave us data. It was an awesome week and wonderful experience for both my kids. They are both desperately wanting to wear the G4. We could attempt to pay out of pocket but you can imagine how costly it would be to pay 100% for two kids. Our third child was only diagnosed in Aug and is currently only using long acting insulin because we caught the diagnosis so early, thus no need for a CGM as of yet for him.

      It is not a matter of Dexcom not being able to sell us the device – it is that if we want it before FDA approves it we would need to pay 100% for the unit and all sensors.

      Currently my oldest (14 on Thursday, dxd at 9) is participating in a study with a pump manufacturer wearing their pump and CGM that are not available in the US. I am not able to blog about the devices as she is participating in an FDA study but I will say that the CGM she is wearing is better than the companies previous unit and i am thankful that at least one of my kids is wearing a CGM even if it isn’t the G4.

      Glad your daughter is enjoying (weird word to use) her G4 and you have found success with it. It is an amazing tool with incredible accuracy and longevity. Im not sure how long yall let the sensor go (do you trick it to use it longer than the 7 days?). I have friends with cwd and adult friends with diabetes that usually get at least 14 days – most closer to 21 days and some as long as 30 days with one sensor -the longer a sensor is worn the better the accuracy as per my friends. As far as receiver distance – I have friends that get accurate data while their child runs the length of a soccer field. The receiver distance is really quite remarkable. I easily kept both receivers in my bedroom more than 50 feet from my children when they slept.

      We are hoping to see the Vibe approved soon as well with the G4 integrated into the Animas pump. From my understanding we can have data going to the pump and the receiver so I will still be able to keep the receivers in my room at night – sadly incorporating the CGM in the animas pump means loosing Ping technology and thus no more remote bolusing. Wish Animas had asked us our thoughts because I would have said do both even if it meant making the pump a 1/4 inch bigger – my kids agree.

      Thanks again for the comment. Best of luck always to you and your family.

  2. Isabel says:

    Dear Christina,
    Many thanks for this wonderful blog. Thank you in particular for sharing the blog on reactive hypoglycemia.
    My 9-year old daughter was diagnosed in May 2013. For a few months now, her 11-year old brother has been suffering from time to time of dizziness and trembling. We have had so many different tests done (heart, brain, etc) all normal. I had noticed that these dizziness episodes happened a few hours after lunch but thought nothing of it. Until the other day, when after a heavily carb- loaded lunch (ginger ale, hamburger and fries) he started feeling unwell. Since I had his sister’s glucometer at hand, I took his blood sugar and was surprised to see a 0,54 g/l. I believe that he has reactive hypoglycemia and this is becoming more and more frequent. The doctors here say that it is not possible and that since his HbA1c is normal, there is no link with type 1. I am waiting to get some more lows and will then take him to have the antibody tests, even though no one seems to believe this is possible. Continue the wonderful blog, I live abroad in China and my only link to the D-community is through the web.

  3. Wendy says:

    Hello Christina,
    I am a mom of a newly dx 4 yr old daughter. Your blogs provide me with comfort and a good laugh when I am feeling pretty lousy.
    I have a question, and yes I know you are not a doctor but you are a mom and I could really use the help. My daughter is the world’s slowest eater. Sometimes over an hour or longer just to finish a sandwich. In the past week this has caused terrible lows as I give her insulin before she eats. We are unable to pump as of yet. Is it possible to break her shots up into half units and give say half before she eats then half or what’s left to give and hour later?
    I am trying to think like a pump as to solve all these lows after she has eaten, and I am not exactly sure how a pump really works to correct this? I feel so lost as to how to stop the cycle of hypoglycemia.
    Being that your kids pump how do you break up the bolus if your child took over an hour to eat?

    Thank you so much,
    Wendy

  4. I LOVE this t-shirt!
    I see it has been a few years since you sold them. Is there anything at all I can do to get one of these tshirts. Its my favorite one ever 😉
    Sincerely, Cricket Boyer

    • Christina says:

      Im sorry I hadn’t see this till now. I don’t have plans to do another sale. Feel free to create your own using all the info from the back of the shirt. Even the “Stick With It Sugar” on the front if it really speaks to you. Sorry I can’t help you. I might have one size medium or large around somewhere that has never been worn. I could probably find it with some serious digging if you pay shipping and handling. I won’t know the size till I find it. Cheers.

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