Sad, Happy, Screwed

So Middles received his first Humalog insulin pen yesterday. I must say I love Novalog but the Huma pen is Awesome looking.

He was beyond excited. Even Sweetstuff said she’d consider MDI again based on the Huma pen.

That is the part that makes me sad and happy at the same time.

It’s sad that my kids can get so excited about new diabetes tools. They shouldn’t have to be excited about them. I am grateful my kids all have such positive attitudes about diabetes management. Life would be so much harder for all of us if they despised it all and only saw what I sometimes see (a life sentence with diabetes, possible complications, added responsibility, the threat of death daily a different normal than others).

He was so excited to try it that he wanted to eat all the things just so he could inject.

His life with the Huma pen will be short-lived since his endo is already beginning the process to get him a pump. Thank goodness because have I said what a pain in the butt diabetes in school is here in CA?

He will be carrying his pen with him at school. He will have it in his backpack with his meter. The rotating nurse that is only at his school one day of week called me twice already (from another school) telling me he had to keep it in the office. I call bullshit.

I’m not having him be late for 1st period to drop it off, then late for the carpool after 8th period to pick it up and likely forget it frequently. He will carry it with him. (there are no lockers at his school, he carries his back pack with him everywhere regardless)

The nurse isn’t happy with me. She tried to insist. I basically said I would keep him home everyday unless she saw things my way. We will have a 504 review meeting early next week so its written in the 504. I have assured the nurse that he will not inject anywhere but the office (although honestly that’s silly since there is no one there to assist him regardless – I just don’t want him doing it in the bathroom and he isn’t comfortable doing it in front of other students).

Moving from a very very early diabetes diagnosis that only required a small dose of Lantus to the more difficult Honeymoon stage is well – total suckage.

His pancreas is still producing a good deal of insulin so dosing for highs and covering carbs can be tricky and treacherous. Last night he was 280 before bed. He was also very hungry. He ate a bowl of cereal and we dosed for the elevated blood sugar and the carbs. I checked his blood sugar two hours later while he slept.

67. Frick.

I’ve been spoiled. Sugarboy can down a 15 gram juice box in his sleep in less than a minute when he’s low. He doesn’t wake up. He feels the straw and smells the sweet nectar and simply drinks without ever opening his eyes.

Sweetstuff is a bit harder – I normally have to coax her awake just a bit and put the straw to her lips. She occasionally snaps at me “WHAAAT?” but mostly just sips the juice down, takes about 2 minutes.

Middles – holy difficult! I tried placing the straw on his lips while he was still sleeping, hoping that like Sugarboy he would simply drink it down. No go. He rolled over and rubbed his lips as if a loose pillow feather had landed on them.

I tapped his shoulder and said his name in a whisper. “Middles (I don’t actually call my kids by their blog names – that would be weird), middles honey you’re low, drink some juice”

Of course he moaned and rolled over. I try again, a bit heavier tapping and loader voice. “Middles you’re low drink the juice”

Fuck – now I have Shelby in my head “Drink the juice Shelby”

Still no response – well no helpful response from the boy. I place my hand behind him and pull him into a sitting position. He moans and says “ok”

Then falls back down.

Again I get him sitting. Again I put the straw to his lips. Again he says “ok” but remains sleeping sitting up.

5 more minutes of me trying to wake him enough to drink. When he does seem slightly conscious I tell him to drink the juice. He takes a tiny sip. Lays down and pulls his covers over him.

This is when I realize I’veĀ been spoiled and I am likely screwed.

Again I get him up. Again I put the straw to his lips. Drink Middles, Drink.

Another 5 minutes of slow painful sips.

He remembers nothing.

This morning he checks his meter and sees the 67. “Mom was I low, I saw a juice box on my night stand.”

Yes Middles you were low. It’s all good, I had your back.

Diabetes is stupid. My kids are awesome. I’m lucky.

 

 

About Christina Ghosn

Mom of 3 kids, all 3 have Type 1 diabetes - I blog to share stories. I am not a medical professional and my thoughts are my own. Please do not make changes to your medical care plan based on my stories - always consult your medical team. Hope you find something in my ramblings helpful and or amusing. You can find me on twitter @momof3type1s and on my Facebook page Stick With It Sugar. May all your dreams forever be bolus worthy.
Tagged , , , . Bookmark the permalink.

8 Responses to Sad, Happy, Screwed

  1. katy says:

    Your kids are awesome.

    I can’t imagine doing this with a new patient. And yet I know I’ll likely have one soon. And yet it seems impossible.

    I thought the D kids *all* came with juice radar that allowed them to slurp without waking. Maybe Middles’s juice radar will develop.

    I’m happy to have you to look to.

    I know we can do it, and do it well, but what a PAIN in the ASS!

    • Christina says:

      Juice radar – thats funny.
      It all comes together eventually.
      Im happy I have so many other awesome Dmoms, Ddads and PWD to help me along the way and continue to inspire me. Your strength is really an inspiration to Katy.

  2. katy says:

    Did I just jinx myself? That sounded like I have no faith in the TrialNet experiment. And I kind of do. (Have faith in it, that is.) I mean I know it *could* work.

    Anyway, thanks for being fantastic.

    • Christina says:

      I don’t believe in Jinxes. I am keeping fingers crossed for y’all. What happens happens and we do what we can to sway it in the direction we want it to go. If it doesn’t go the way we want we adjust our sails and ride it out.

  3. Karen says:

    “Diabetes is stupid. My kids are awesome. I’m lucky.”….I love that! And ditto for me; (even though only one of my 3 has diabetes, the other 2 are awesome too:). ). My sWeet girl was AWFUL to try and get awake at first for treating lows. She is such a heavy sleeper. She could never drink much and sometimes it felt like I was going to use to hew the Skittles for her if she was going to get them down. Then I discovered 2 things. 1: most of the time it didnt take 15 carbs to bring her up…often 9 – 12 would work and I found these softer-to-chew cherry balls that are 3 carbs each so those were easier and then 2: even better, the squeeze packets of applesauce she can suck down in about 8 seconds. I don’t know why she can do that way better than a juice box, but for some reason she can and those are 15 carbs, but they don’t spike her like the candy does. YDMV and all…including among your 3 kiddos obviously! I know you know way more than me, but thought I’d share that from the hard-sleeping kid perspective. And she did get better. Like, she doesn’t wake up still, but if I put the applesauce to her mouth she sucks it down or If I tap the cherry ball against her lips she’ll open her mouth like a little bird and chew in her sleep. And have no memory of it in the morning.

    • Christina says:

      I don’t think we ever stop learning new tricks of the trade and I certainly appreciate any suggestions shared. I think it will get easier to fix him at night eventually. He likely didn’t need the entire 15 grams (and I think he only got about 12 due to his labored sipping) but better to be safe since I have no idea what the insulin is gonna do just yet.

  4. shannon says:

    DRINK THE JUICE SHELBY

Leave a Reply

Your email address will not be published.

     

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>