Supportive Friends & Stupid People (Guest Post)

My dear daughter shared a story with me. It was a good story so I asked her if she would like to share it with the community via guest post. I was surprised when she said yes because honestly lately she hasn’t wanted to talk much about diabetes. That being said she is in the middle of a list of pros and cons regarding her new TSlim pump.

Without further delay – here is her story, written for you by Sweetstuff.

So today in environmental/marine biology two of my very close friends and I were just doing our ocean poster. (Which I have to say I drew a very nice sea turtle on.)

turtlephoto And everyone is talking, and then over it all I hear across the room another student say, “what the hell?! You want me to get diabetes or something?!” And of course both my friends looked up at me like, ohhhhhh shit.

My teacher, Mrs. S, looked at me also and was like “wait until after class” because after 2 years of having me in class she understands I’m gonna educate this guy.

So when class ends he’s sitting in his seat (just so happens he has science with Mrs. S after EMS) Luna and I walk up to him and I start educating him on the difference between type 1 and type 2. (changed my friend’s name for interwebz – she’s a huge Harry Potter fan too)

Me- “ok first of all there is a huge difference between type 1 and 2.” (He’s sitting there all nonchalance) “Type 1 diabetes is an autoimmune disease where the body attacks itself.”

And guess what he said… “No you get diabetes from eating too much sugar.”

Yes, he argued with me.

Then Luna, who was still standing with me, threw in, “dumbass! She has type 1 diabetes, I think she would know!”

And guess what he said… guess… “No she doesn’t.”

Yep. He tried to tell me that I didn’t have diabetes. Oops they must have made a mistake at the hospital. -__- No.

Then Luna pulled my sweater aside to expose my pump. “Dude! You see this, it’s a medical device!” and then he came back with “No it’s not! It’s an iPod, what do you think I’m stupid?!”

Yes, I do think your stupid. (Hence the title).

Then he said, “Wait are you being serious?” no shit Sherlock.

I couldn’t handle myself anymore so I walked away to go to my next class. But apparently my lovely Luna stayed behind to talk with him cus then later in the day he came up to me and apologized. “Hey I’m really sorry for what I was saying. I completely understand now and I’m sorry.”

The world will never know what Luna said, but I’m sure glad that I have her as a good friend of mine. I don’t know what I would do at school without my amazing and supportive friends.

I could do without the stupid people though.

So yea, My daughter (although currently is a total pain in my backside) is amazing and I love her very much.  BTW – she asked me if she should include the cuss words she used and my reply was “my readers would expect nothing less from a daughter of mine”.

Parenting win.

Staying Emotionally Safe

I don’t share my kids real names here or on Twitter or on Instagram.

I want to keep my kids safe. Not just physically safe from predators and the like but also emotionally safe and preferably not searchable via web searches.

I’m not alone. Many parent bloggers and PWD who blog don’t share their kids names. Had I not been an avid diabetes blog reader before blogging myself I might have not considered using pseudonyms for my kids. It is just something that other bloggers did and it made sense.

Some bloggers do use their kids names and I’m not judging – promise if I wasn’t a bit paranoid I wouldn’t have thought anything of it. I’m a bit of a nervous ninny and the internet is a scary place. Things get shared so quickly. In fact, recently I have seen dozens of posts on Facebook of teachers and parents holding signs that ask people to share so they (the parents and teachers) can illustrate how quickly photos can go viral. Now some of those photos are likely put out by asses that participate in “like farming” – basically they post a photo that is bound to get a bazillion likes or shares and then sell the page to the highest bidder. Seriously this is a thing. The ‘like farmers’ use photos that say things like “like this if you love Jesus” or “Like if you want me to kick cancer’s butt” or sometimes just cute puppies – who doesn’t like adorable puppies. Sorry I digress – but you can read more about ‘like farming’ here. I’ll move on now.

In the past I would accept Facebook friend requests like I’d except a free Reese’s candy bar. Hell yea I want a Reese’s.

But – I learned a valuable lesson about a year ago when it was discovered that a person without any real diabetes connection was fabricating stories and infiltrating our happy little diabetes community. It wasn’t the first time and won’t be the last that someone “fakes” it. Many times these fakers are suffering from a mental illness (I forget the name). They simply want/need attention. Other times the fakers are more dangerous – they will earn our trust and our empathy and then they will fabricate some horrific event and in the end ask for help in the form of donations. Evil people.

With this being said I tread carefully and where there was once free trust, now it needs to be earned. I no longer accept friend requests from strangers on my personal Facebook, people I haven’t met IRL (in real life).

However I do have a fan page for Stick With It Sugar on Facebook and you can like it here.

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I promise I’m not selling anything, buying anything, or processing anything – I’m just saying stuff and sharing stuff better said.

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http://www.youtube.com/watch?v=VEgu7jdc_fs

Like John I haven’t been knocked down yet so I’m still just kick boxing my way through diabetes.

So how does Staying Emotionally Safe fit into all of this? Well in addition to keeping my kids safe from predators and google I need to keep myself safe from those that perhaps unintentionally will take advantage of my willingness to communicate, to help, and to listen.

Diabetes takes a huge toll on those with it and those that care for others with it.

Diabetes seeps into nearly every aspect of our lives and it is easy to fall into a diabetes centric world. I don’t want to live in that world. I don’t want my kids to live in that world.

I share A LOT about diabetes on my Facebook, not just the SWIS page. Some might suggest I have “too much diabetes” in my life. Ya Think?

BUT the difference between sharing a conversation on Facebook, blog comments and twitter interactions is I get to choose the when and how.

That isn’t true if I share my home address, phone number, and personal email. If I share those means of communication I am leaving the door open to diabetes conversations anytime and anywhere. And so –  I don’t share them, not unless I have become close friends regarding things other than diabetes like Reese’s and funny shit pets do.

I have no medical training. I don’t have any grief or stress management training. I am not qualified or comfortable to provide counseling or medical advice. Just FYI.

As a person without diabetes I can choose at times to close the door on diabetes. I can step away and enjoy a meal with friends and not count carbs. I can text friends and chat on the phone without using the words ‘diabetes, insulin, depression, carbs, etc.  I hope as PWD my kids will find ways to close the door too and only allow diabetes in long enough to do the do diligence then kick its ass out for extended periods of time.

My point – please do not be offended if I don’t accept your friend request on FB or answer your email requesting I call you or provide you my mailing address. It isn’t personal. Honestly. It’s me doing what I can to stay safe emotionally and physically and keep my kids safe too. I want to maintain some semblance of control regarding when I let diabetes conversations into my life – Lord knows my kids and I get very little control otherwise.

 

 

Gluten Free Pumpkin Bread

So I got this recipe from a dear friend 12 years ago. The recipe is not really for GF pumpkin bread. It is just regular pumpkin bread. BUT Sugarboy’s kinder teacher was GF and I always made the bread for teachers and didn’t want to neglect his awesome teacher. Thus I found flour that would work to make GF and it really is delicious.

So for all my GF friends – here is a fun recipe for the holidays.

Makes Two loaves of sweet delicious pumpkin bread.

Ingredients:

4 cups Bobs Red Mill GF all-purpose flour (or regular flour for those not going GF)

3 cups sugar

2 tsp. Baking soda

1 1/2 tsp. salt

1 tsp. baking powder

1 tsp. cinnamon (will not cure diabetes)

1 tsp. nutmeg

1/2 tsp. Allspice

1/2 tsp. cloves

1/4 tsp. ginger

4 eggs slightly beaten

1 cup vegetable oil

1 can(15 oz) Libby’s pure pumpkin

2/3 cup water

1 cup chopped pecans

How To:

Preheat oven to 350 degrees

prepare two loaf pans with cooking spray and flour (be sure to use the Red Mill GF to coat loaf pans for GF bread)

Blend eggs, oil, pumpkin and water in large mixing bowl on medium speed

In another large bowl mix all dry ingredients

Slowly add dry mixture to wet ingredients and blend on medium.

Fold in pecans. (I’ve also used walnuts)

Pour evenly into 2 loaf pans

Bake for 1 hour or until tooth pic comes out clean.

Remove from oven and allow to cool for 10 minutes.

Enjoy.

 

 

Oh Be Careful Little Mouth What You Say

I am forcing myself to share this very very unflattering photo. It's my punishment for stupidity. You'll understand after.

I am forcing myself to share this very very unflattering photo. It’s my punishment for stupidity. You’ll understand after.

So last night. Wait I should start earlier. (quick warning – when I got to 1356 words I realized how long a post this would be. It is more than 1600 words. If you would like to skip the story and go straight to the moral feel free to scroll down – it’s an important lesson IMHO for all parents of kids with diabetes)

So yesterday afternoon I took Sugarboy up to Stanford to get started in a diabetes technology study. Since it’s a study I can’t/won’t share what he is wearing for the study or really any details. But I will say that his bedtime blood sugar needs to be under 260 for him to complete the study each night. The study is many nights long.

After the visit to Stanford he was starving. It was early, maybe 4pm. He wanted a personal pan pizza from Target (they sell Pizza Hut personal pan pizzas). While they are delicious they are also the antiChrist when it comes to diabetes management. Not only are they 80 grams of carbs but also loaded with thick gooey cheese and I’m certain they must use a good deal of butter/oil in the crust because multiple napkins are necessary. Of course he gets the pepperoni which adds an additional layer of fat.

A bit about carbs mixed with protein and fat. They (the carbs) are digested at a painfully slow rate. It takes a great deal of experience in the diabetes world to determine how best to dose insulin for meals that are what we call the triple threat (high carbs, high fat, high protein). Sometimes we are able to win the battle – extended doses of insulin over a 4-8 hour period after consumption usually does the trick. If you are a newbie to the diabetes world don’t fret about not figuring it out the first 27 dozen times – its something that takes time to figure out and every person with diabetes digests food differently – also not all pizza is created equal. Thick crust will take longer to digest than thin crispy. Veggie vs. Meat lovers – game changer.

Anyway – it was early enough in the day I thought all would be well. Eat at 4pm, do an extended bolus (insulin pump jargon for those taking multiple daily injections) and all should be well by bedtime in 5 hours.

I could not have been more wrong.

Bedtime blood sugar: 457 (see even those of us that have been dosing for pizza for over 7 years get it wrong and diabetes goes all wonky) (also note that we had neglected to check his blood sugar from 4pm to 9pm – not great after eating pizza)

I asked Sugarboy to dose for the elevated blood sugar (y’all do know that I don’t talk like that to my kids – that’s for y’alls benefit – what I actually say to my kids is “ok correct” but that wouldn’t make sense to some readers – then again most my readers are seasoned and would know so I could easily just type what I say and y’all would know but what if a newbie is here reading – imagine how “ok correct” would sound to them – holy crap I digress – also I might have used the word ‘y’all’ a few times and I’m not sure I took a breath while writing all this – can you say run-on)

Ok so Sugarboy dosed insulin to correct the high. He asked if he could sleep in my bed. With hubby away I love having him sleep in my bed. Also it makes for checking his blood sugar easier when he’s near me. (well it does but I still need to get up to check two other cwd so really thats a non-point)

He wanted me to go to bed with him. This is where mistake #1 was made.

I said I couldn’t because I would need to stay up and check his sugar in two hours so I could start the study computer.

His face dropped. He looked so sad. I thought because he wanted me to cuddle with him. I couldn’t cuddle – I would’ve fallen asleep – it wasn’t that I didn’t want to cuddle.

He then announced I could go to sleep. HE would stay up and check his sugar and start the study computer.

What? No. I tell him he needs to sleep and I have things to do so it’s all good.

It didn’t register right away. I mean it didn’t even register last night. It took till this morning to register what was happening. But Ill get to that in a second.

Two hours after he dosed insulin I checked his blood sugar. 431. #&@!

Ok so we likely didn’t screw up the dosing of the pizza. Clearly his infusion site (place where pump tubing attaches to body to deliver insulin) went bad. It was only at the tail end of day 2. The sites are normally good for 3 full days even longer sometimes if we forget to change it out.

Participating in the study last night was off the table. No big deal. Only it is since we are kinda on a time crunch since the study takes 3 months and we are moving at the end of 3 months. Each night we miss leaves us less of a window to finish the study.

Again no longer concerned about the study I focused on changing his infusion site. Sometimes I can get this done without waking him. Sadly we are out of the quickset infusion sets that are easiest to place IMHO. I had to use a different type of infusion site that I am not entirely familiar with.

I fumble around with placing the sensor in the applicator device for a good 7 minutes. I cock the device, remove the little plastic piece that protects the needle (or my fingers which ever), place it on his skin and press the release buttons that plunge the needle and flexible cannula into his skin. He woke up. He screamed in pain. He tried to grab at the applicator which I had not yet removed from his skin. I patted his hand and apologized. He went back to sleep. I gently lifted the applicator. @&#@

I had not removed the tiny pieces of paper that cover the adhesive parts of the infusion set. Thus the site came up with the applicator. I just punctured my kids skin for nothing. And worse, I’ll need to do it again.

Back downstairs. Another infusion set. Less time to place it in the application device this time around. Back up stairs. cock, remove paper, remove needle cover , place on skin, press, pull – Success – he did stir again but no scream this time. (I should note to any newbies or veterans considering a pump – very very rarely do my kids complain about pain when inserting a new infusion site. They agree it isn’t really painful and if it is, it only lasts a micro second. Now being lanced with a needle while in the middle of REM – well who the heck wouldn’t occasionally scream).

I fill the pump tubing with insulin then attach to his body. I dose him with insulin to correct the high. Keep in mind he has now likely been really really high (400+) for 7 hours.  The correction is a very large amount of insulin. If he had received any of the previously dosed insulin I could be putting him in danger. Thus I set an alarm to wake up in 2 hours.

At 1am my alarm goes off and I check his blood sugar. 301. I give him another correction. sometimes the longer a pwd is high the more difficult it is to correct. I don’t know the science behind it – I just knows it happens.

I set another alarm. 3am – 238. There is still a good deal of insulin working in his body so I do not do another correction.

This morning he is a very pretty 113. Of course he feels like crapola.

Meanwhile my other dear son is babbling (in his sweetest little voice) about a scooter he wants for Christmas. By this time I have heard about the scooter a dozen times in less than 24 hours. I’m fairly exhausted from the previous nights wompus with diabetes and I tell him so. I did this without thinking. I didn’t do it in an angry voice. I was sure to say “I’m sorry Middles I just can’t focus on the scooter right now because blah blah blah Im exhausted I didn’t get much rest can we talk later?” Middles understood and all was well, right?

No.

Sugarboy heard it all. He sat with his toast hanging limp in his hand half way to his mouth with a tear rolling down his cheek. He looked crushed.

He wiped his little tear, put down his toast and announced that he will stay up next time so I can go to bed.

Did you hear my heart break? I’m fairly certain it shattered on the floor.

I told him it wasn’t his fault. I told him diabetes is stupid. I told him I had things to do anyway. I told him I would nap later. I told him its not a big deal. I even lied and whispered to him that I was exaggerating because I didn’t want to hear more about a scooter. I told him anything I could think of to take the sadness and guilt off him.

So the moral – some unsolicited advice for other Dmoms and Ddads out there – be careful what you say in front of your little ones in regards to the hard times WE have helping manage diabetes. As much as we hurt for them they hurt for us. They see all we do, all we give up, how tired WE are and it makes them sad and makes them feel guilty. They have enough to worry about. We do this for them but they shouldn’t have to hear about it. They already know and if they don’t recognize it now they will when they grow and leave and have to spend a lifetime doing it for themselves. Just my two cents.

I love this kid.

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Sad, Happy, Screwed

So Middles received his first Humalog insulin pen yesterday. I must say I love Novalog but the Huma pen is Awesome looking.

He was beyond excited. Even Sweetstuff said she’d consider MDI again based on the Huma pen.

That is the part that makes me sad and happy at the same time.

It’s sad that my kids can get so excited about new diabetes tools. They shouldn’t have to be excited about them. I am grateful my kids all have such positive attitudes about diabetes management. Life would be so much harder for all of us if they despised it all and only saw what I sometimes see (a life sentence with diabetes, possible complications, added responsibility, the threat of death daily a different normal than others).

He was so excited to try it that he wanted to eat all the things just so he could inject.

His life with the Huma pen will be short-lived since his endo is already beginning the process to get him a pump. Thank goodness because have I said what a pain in the butt diabetes in school is here in CA?

He will be carrying his pen with him at school. He will have it in his backpack with his meter. The rotating nurse that is only at his school one day of week called me twice already (from another school) telling me he had to keep it in the office. I call bullshit.

I’m not having him be late for 1st period to drop it off, then late for the carpool after 8th period to pick it up and likely forget it frequently. He will carry it with him. (there are no lockers at his school, he carries his back pack with him everywhere regardless)

The nurse isn’t happy with me. She tried to insist. I basically said I would keep him home everyday unless she saw things my way. We will have a 504 review meeting early next week so its written in the 504. I have assured the nurse that he will not inject anywhere but the office (although honestly that’s silly since there is no one there to assist him regardless – I just don’t want him doing it in the bathroom and he isn’t comfortable doing it in front of other students).

Moving from a very very early diabetes diagnosis that only required a small dose of Lantus to the more difficult Honeymoon stage is well – total suckage.

His pancreas is still producing a good deal of insulin so dosing for highs and covering carbs can be tricky and treacherous. Last night he was 280 before bed. He was also very hungry. He ate a bowl of cereal and we dosed for the elevated blood sugar and the carbs. I checked his blood sugar two hours later while he slept.

67. Frick.

I’ve been spoiled. Sugarboy can down a 15 gram juice box in his sleep in less than a minute when he’s low. He doesn’t wake up. He feels the straw and smells the sweet nectar and simply drinks without ever opening his eyes.

Sweetstuff is a bit harder – I normally have to coax her awake just a bit and put the straw to her lips. She occasionally snaps at me “WHAAAT?” but mostly just sips the juice down, takes about 2 minutes.

Middles – holy difficult! I tried placing the straw on his lips while he was still sleeping, hoping that like Sugarboy he would simply drink it down. No go. He rolled over and rubbed his lips as if a loose pillow feather had landed on them.

I tapped his shoulder and said his name in a whisper. “Middles (I don’t actually call my kids by their blog names – that would be weird), middles honey you’re low, drink some juice”

Of course he moaned and rolled over. I try again, a bit heavier tapping and loader voice. “Middles you’re low drink the juice”

Fuck – now I have Shelby in my head “Drink the juice Shelby”

Still no response – well no helpful response from the boy. I place my hand behind him and pull him into a sitting position. He moans and says “ok”

Then falls back down.

Again I get him sitting. Again I put the straw to his lips. Again he says “ok” but remains sleeping sitting up.

5 more minutes of me trying to wake him enough to drink. When he does seem slightly conscious I tell him to drink the juice. He takes a tiny sip. Lays down and pulls his covers over him.

This is when I realize I’ve been spoiled and I am likely screwed.

Again I get him up. Again I put the straw to his lips. Drink Middles, Drink.

Another 5 minutes of slow painful sips.

He remembers nothing.

This morning he checks his meter and sees the 67. “Mom was I low, I saw a juice box on my night stand.”

Yes Middles you were low. It’s all good, I had your back.

Diabetes is stupid. My kids are awesome. I’m lucky.

 

 

Glucagon? What’s That?

I should be grocery shopping. My poor kids lunches were pathetic because of my lack of grocery shopping yesterday. No regrets we were having fun at the beach. Still a bagel with cream cheese, banana and slim jim is not exactly the lunch my kids were each hoping for.

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I should be cleaning my house. At least 3 loads of laundry are in a pile in laundry room. A nearly fruitless search for socks this morning was not a great way to start the day. The dishes in the sink aren’t going to wash themselves and it is never good when the cat can chase around fur bunnies due to lack of vacuuming. Again – no regrets the beach was amazing.

I should be organizing closets and the garage – can’t list my house for sale in its current state. It would be bad for potential buyers to have to step lightly around ironman action figures, rogue legos and stacks of who-knows-what. Eh – I’ve got a bit more time before I need to list the house. It’ll all come together even if it takes a few pots of coffee and some stress eating (i never do that).

What have I been doing all morning? Glad you asked – well you stuck around this long to find out about glucagon so I assume you are slightly interested.

So my Middles has been requiring shots of Novalog more and more frequently. He had been using only Lantus (long acting insulin) to manage his diabetes. Unfortunately his pancreas is clearly pooping out sooner than we had hoped. During the Thanksgiving break he was receiving 2-3 shots of fast acting insulin due to after meal spikes (the high carb count meals during the break were not helpful).

Today he returned to school. His morning BG (blood glucose) was 155. Not excellent but not shabby considering the 457 he went to bed with (received novalog to correct that number). He ate a 30grams of carbs for breakfast and off he went. I told him to text me his numbers 2 hours post meal and if he was above 250 I would come give him a shot of novalog. (He has not been using fast acting insulin at school and thus no doctors orders are on file and he hasn’t been carrying insulin with him)

At 9:15am I get the text: “Im 401 please bring me insulin.”

I cancel a coffee meet-up and head off to the school. I give the boy 1.5 units of novalog, remind him to drink water and watch his sugars then send him off to class.

Seeing as I had just given him fast acting insulin and he is still very much honeymooning (a time after diagnosis where the patient still produces some insulin so less artificial insulin is required) I wanted to leave the school office staff with a glucagon kit.

A Glucagon kit is an emergency kit for people with diabetes. Similar to an EpiPen used by those with severe food allergies only it isn’t a pen – it is a vial of a powdered form of synthetic glucagon – (a human hormone that triggers the liver to release glucose) and a syringe filled with distilled water. To use the glucagon kit one must inject the water into the vial of powdered glucagon, swish to mix and refill syringe with liquified mixture, then inject into person with diabetes. This is normally only done if the pwd is unconscious or having seizures do to a severe hypoglycemic episode (hypoglycemia is caused when there is too much insulin and too little sugar in the body – it can be deadly). A side note – glucagon can and sometimes is used in small injections for a pwd that is experiencing a very low blood sugar but is not unconscious or having a seizure – or if the pwd is very low but can not eat or drink any sugary substance.

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quick disclaimer – I am not a doctor. I have never had to inject glucagon (so very thankful). The only experience I have is with oranges and expired kits. I can only share what I have been taught or learned. Please be sure to talk to your doctor/child’s doctor prior to using glucagon – if you have not received training at diagnosis please be sure to ask about it at your next endo visit.

Ok – moving on now that any newbies know what a glucagon kit is and why it is used.

I anticipated the office staff (there is no nurse on school property other than on Fridays) having an idea of what a glucagon kit is and who should be contacted if it is required.

I got blank stares. The two office staffers knew nothing about glucagon. Not only had they never seen one they didn’t believe any staff on campus knew what they were or if any were trained to use the emergency kit.

Seriously? My son is not the only cwd at the school. There are at least 3 others that I know of, maybe more. Certainly someone in the school knows about diabetes and glucagon and emergency diabetes care.

A bit of back story. California as a whole sucks big time at diabetes in school. There are some schools and some districts that are better than others at providing support. But up until July of 2013 no non-licensed person (meaning no one that wasn’t a certified nurse) could assist in insulin injections. In July the CA supreme court ruled that it was now legal for non-medical staff to assist in insulin administration. Prior to the ruling parents of cwd who were not independent (meaning they managed their diabetes without supervision at school) would have to go to their child’s school and assist their child or their child would not get insulin all day even for meals. CRAZY right? The new law was supposed to ensure that schools would have at least 1 or more staff members willing and able to assist in determining insulin amount, injecting insulin, and overseeing care in general. Our school district basically hasn’t decided if they want to adhere to the law. It seems they think it is a voluntary law. Anyway I’m digressing – this post isn’t so much about the laissez faire way the district approaches the insulin law it is about emergency care.

Even before the recent Supreme court ruling schools have been required to have staff trained in emergency care – i.e glucagon.

It isn’t enough to train staff. All school staff should be aware of who is trained in glucgon administration. So imagine my shock to learn that the office staff – the staff that have to deal with medical emergencies have no idea if anyone is trained or who those staff members would be. Who’s in charge of training staff and disseminating the information? Well it falls on the nurse. The nurse that is only at the school 1 day a week. It should also fall on school administration. This school nurse has dropped the ball. There was no list of people trained.

The very sweet and kind office staff member that was fortunate enough to deal with a flustered mom this morning (thats me) was doing her best to find the information and help rest my nerves. She did ask me to explain the glucagon to her and I did. I was sure to explain that a person cannot be harmed by glucagon. The only thing glucagon can do is a save a life. It isn’t like insulin I say. It is true insulin can kill a person if administered incorrectly and I am not asking for anyone to inject my son with insulin (even though its the law and I have ever right to ask that). She listened to the instructions, asked questions and assured me my son would be safe. I assured her he would never likely need the glucagon but felt better she at least listened to my explanations. I assured her I would bring in an old glucagon and train any and all willing how to use it. (Not my job but better me than a nurse that can’t be trusted to do her job). (blimey I used the word ‘assured’ a number of times there.)

The staffer called me a bit after I left to let me know that the principal, assistant principal and counselor were familiar with glucagon. She didn’t say when they were last trained. I feel better knowing that the school does have 3 trained staff members. Still it would be helpful if other staff – the ones most likely to get the emergency call from a panicked teacher – knew who was trained and that there are emergency procedures to follow in addition to calling 911.

I had not asked at Middles school who was trained prior to today because until today my son was not using fast acting insulin at school. However – I have also not asked at my other two children’s schools. They do take fast acting insulin daily at school. What if the same is true at the other two schools – no one knowing who is trained – are there people trained?  I took the nurses word for it – When she said she trained 3 people I believed her. Let’s assume she did train 3 people in each school – does anyone at those schools know who is trained? Do teachers and office staff know emergency protocol for cwd?

I miss my Texas schools. I miss the way every staff member at the schools knew which kids had diabetes, which had severe food allergies and what actions to take if there was an emergency whether it was on the playground, cafeteria, classroom, library or gym. Everyone knew the damn protocol. I wish schools across the country would recognize the importance of educating all staff regarding medical emergencies. With food allergies and Type 1 diabetes on the rise – both are increasing by 3% or more each year – schools should be prepared.

I spend hours every week tweaking insulin dosages, counting carbs, changing pump sites, charging meters, checking late night blood sugars, learning about new technology, new diabetes management methods, etc – HOURS – and my kids are right there with me much of the time. All this effort and planning should not go to hell in a hand basket the moment any of my kids step foot in a school.

So my advice – just in case like me – you have put your trust in others and believed them to be working in the best interest of your child. (Note – when my daughter was dxd I was at the school often to ensure every base was covered – I wasn’t so laissez faire myself back then) – double check who is trained in glucagon at your child’s school. Who knows who is trained? What is the emergency protocol for your child’s school? Even if you did this when your child began kinder or when he or she was first dxd – if it is a new school year – maybe check into it. Staff changes and sometimes things like emergency protocols for kids with chronic illness are not passed on to new staffers (that is the case at my sons school).

Oh my – I was a bit wordy today. Here is a cute cat picture for your time. Wish it wasn’t of my cat sleeping – tried to catch her playing with fur bunnies but that didn’t happen. Mostly she sleeps. It must be hard being a cat.

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