Snorks and Demons Be Damned

It’s been awhile.

I’ve not posted.

That could mean a lot of things.

It could mean that nothing has gone wrong.

It could mean no one has required me to put on big girl panties.

It could mean that life is too busy being awesome for me to take the time to share.

It is all of these above and for that, I am thankful.

Of course we have experienced some bad pump sites (infusion sites where insulin pump infuses insulin into the body). It happens. We change sites, correct highs and move on.

We have also had some yucky low blood sugars – in all three kids. They drink juice, eat a fruit roll up and tell me they are STARVING for 15 minutes but again we move on.

Just another month with our unwanted house guest that refuses to leave, occasionally puts its feet on our coffee table (we don’t actually have a coffee table – technically its an ottoman but saying ‘puts its feet on our ottoman’ really doesn’t cause the visual cringe like a coffee table image does), it makes a ruckus at night, it messes with the kids homework like a poorly trained dog, and in general gets annoying.

That is until last night. My littlest, my Sugarboy was 268 at bedtime which meant no cookie. For those not overly familiar with type 1 diabetes – normally he can have a cookie and take insulin but when he is already high I turn into the soup nazi and its “no cookie for you” only I say it with a hug and an apology. We dosed insulin, read stories and kissed good night. He was tired and his head hurt from the high blood sugar and I was sad for my son.

I plugged into my phone, hit play and listened to Percy Jackson battle a number of monsters in a labyrinth while I tidied up the kitchen, folded laundry and moped a floor. An hour later I was relaxing on the couch with my new John Irving book. An hour after that I checked blood sugars.

Kid #1 – all good.

Kid #2 – right as rain.

Kid #3 – Sugarboy – not so much, lower than he was before bed but not by much. I figured it was a stubborn high, dosed more insulin and returned to my comfy couch. Too sleepy to read I caught up on Big Bang Theory (oh that silly Sheldon), Modern Family (glad I’m not the Cam of the family), and Two and a Half Men (mmm Ashton).

At this point it is after 1am and I am fighting exhaustion myself. I check the boy. He is now higher than he was before bed. Insert a number of expletives here also insert a new infusion site. Luckily my boy did not wake up when I put a new infusion site on his backside, despite the needle that shoots through the skin to leave the flexible canula behind. When he has high blood sugars he sleeps more soundly than normal. His body is just exhausted from the additional glucose coursing through him and very likely some ketones (ketones are toxins produced when the body burns fat and fatty acids for fuel because it doesn’t have enough glucose available – the irony is the glucose is there for people with diabetes but the body is lacking the magic key (insulin) needed to use the glucose). Dose insulin. Kiss his forehead. Kiss his little hand that hugs his pillow and say a little wish that all will be well.

I set my alarm for 3am. I don’t always do a 3am check but with a new infusion site, high blood sugars and a large dose of insulin to correct a high blood sugar I do need to recheck him.

Fast forward to 6:05am when my normal alarm goes off. Great song playing ‘Demons’ by Imagine Dragons. It’s kind of a dark song but has a catchy tune and I take the lyrics as a warning not to let my demons rule my days. Sorry – digressed.

Demons – In case you don’t know the song.

As the song played on I realized I didn’t hear my 3am alarm. This is the scene where I leap from bed and down the hall in less than a blink of an eye. Crash into the boys room and pause for a half second to watch his chest rise and fall. He is alive. I didn’t overdose him with insulin. (Just FYI – I am not the only parent who watches for the rise and fall of a child’s chest when the child has Type 1 diabetes – trust me on that.)

I check his blood sugar. Insert more expletives. His blood sugar 468. He wakes up, tells me his head hurts, tells me his chest hurts, tells me his stomach hurts. Then he goes potty – you know that scene in Austin Powers  – the Wiz – yea it was like that.

Don’t know the scene – click here >>> The Wiz

I tell him about the late night highs and the new infusion site. I tell him it likely failed.

He took the one I put in at 1am off – thankfully without much complaint. Sometimes those suckers stick on pretty good and removing them can be as uncomfortable as getting a new one.

The reason the new site and correction dose of insulin at 1am didn’t work.

photo

Friggen snorks. Shakes fist in air.

The infusion set I put in at 1am didn’t take. The canula (flexible tube that stays under his skin) bent and therefore was not infusing insulin into his body. We here in the diabetes world call that a snork. (remember the cartoon with odd sea creatures with the bent snork on their heads – google it if you don’t and don’t be fooled by their cuteness – they are pesky little a**holes).

Put on a new infusion set and dosed insulin. Checked ketones – LARGE. He ate toast and a yogurt (yes he was high but the only way to clear ketones is to eat carbs, dose insulin and drink lots and lots of water).

His blood sugar at 9am – 270. He was going down which meant the new infusion site was working. Still had a long way to go plus he still had moderate ketones.

He stayed home from school. It wouldn’t have been safe to send him to school with a severe high blood sugar, large ketones and a wallop of an insulin dose. Not to mention he felt miserable.

It’s eleven now. His sugars are down to 180. Ketones are small. He is still home playing xbox and relaxing. I’ll let him veg the rest of the day – he’s earned it.

Meanwhile I was writing this in an attempt to clear my head and keep the demons (anger, frustration, fear) at bay. I like it better when I don’t have much to say. Take time to hug a diabetic today.

PS. was not my intention to rhyme so much – clearly I’m feeling lyrical.

About Christina

Mom of 3 kids, all 3 have Type 1 diabetes - I blog to share stories. I am not a medical professional and my thoughts are my own. Please do not make changes to your medical care plan based on my stories - always consult your medical team. Hope you find something in my ramblings helpful and or amusing. You can find me on twitter @momof3T1s and on my Facebook page Stick With It Sugar. May all your dreams forever be bolus worthy.
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6 Responses to Snorks and Demons Be Damned

  1. Sara says:

    SNORK!

    I have never heard them described as snorks before but gosh that is the perfect description. That’s why I switched to the steel needles. What can we call those?

  2. Karen says:

    Cried when I read this..then sent it to my mom. I think I don’t explain things well enough to help others understand why I stay up a lot. You said it perfectly. The panic…Running to his room when you slept through the alarm because you were beyond exhausted and watching first for the rise and fall of his chest…you’re right, you’re not the only parent of a child with t1d to do that, this week even. Thanks. Sometimes just knowing that this is “normal” for the diabetic pond when I’m in an ocean of non-d “normal” …just helps me to know we’re doing okay. Thank you.

    • Christina says:

      Hey Karen. Thanks for the nice comment. It is a scary feeling – the feeling that you slept through an alarm. Its hard to explain to people, even family. Its been over 7 years and I think maybe my family gets it. Maybe. Our normal is so much different than THE normal sometimes. Im glad you shared it with your mom – sometimes hearing it from others helps more than hearing it from us.

  3. Elisheva says:

    I hope he’s feeling better by now. Sending happy blood sugar vibes for all three kids <3

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