Wordless Wednesday

There was a Jog-A-Thon at Sugarboy’s school today. Beginning Blood Sugar 247. The kids would run for 30 min. Sugarboy ran his little heart out. He completed 3 miles. Not too shabby. After the students got a popsicle. I asked him to check his BS. He asked me to do it while sprawled on the grass, said he felt low.

Then this…

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It says 36.

He didn’t feel it until he was sitting down sucking on a popsicle. He finished running 10 min prior. Messed with his friends, counted his laps, posed for a class photo. No indications he was spiraling closer and closer to a truly unsafe number. Not until he was sitting and his body took stock did something click that something wasn’t quite right.

He drank a juice, a fruit roll-up, another fruit-roll up, his popsicle, and a bag of gold-fish before he felt human again. In the meantime classmates surrounded him with well wishes and concern, they patted his back and sat near him. 27 of these amazing young humans checking on my Sugarboy. (Yes he ate it up, despite how he must have felt he was smiling and nodding his head and saying thanks)

I didn’t leave school grounds until his blood sugar was above 90 (which didn’t take long with all the carbs he ate) It’s a half day so he will be home relaxing soon. I’m very proud of how hard he ran. I’m very glad he did eventually feel the low. I’m scared that he could have missed it had he not sat down. I’m glad I was there and thankful his teacher was vigilant as well and retrieved additional snacks for him. Most of all I’m thankful for all the support his entire class shared.

Ok – so not so wordless but you wouldn’t be either staring down a 36 or having been witness to truly amazing little humans showing such kindness and compassion.

Snorks and Demons Be Damned

It’s been awhile.

I’ve not posted.

That could mean a lot of things.

It could mean that nothing has gone wrong.

It could mean no one has required me to put on big girl panties.

It could mean that life is too busy being awesome for me to take the time to share.

It is all of these above and for that, I am thankful.

Of course we have experienced some bad pump sites (infusion sites where insulin pump infuses insulin into the body). It happens. We change sites, correct highs and move on.

We have also had some yucky low blood sugars – in all three kids. They drink juice, eat a fruit roll up and tell me they are STARVING for 15 minutes but again we move on.

Just another month with our unwanted house guest that refuses to leave, occasionally puts its feet on our coffee table (we don’t actually have a coffee table – technically its an ottoman but saying ‘puts its feet on our ottoman’ really doesn’t cause the visual cringe like a coffee table image does), it makes a ruckus at night, it messes with the kids homework like a poorly trained dog, and in general gets annoying.

That is until last night. My littlest, my Sugarboy was 268 at bedtime which meant no cookie. For those not overly familiar with type 1 diabetes – normally he can have a cookie and take insulin but when he is already high I turn into the soup nazi and its “no cookie for you” only I say it with a hug and an apology. We dosed insulin, read stories and kissed good night. He was tired and his head hurt from the high blood sugar and I was sad for my son.

I plugged into my phone, hit play and listened to Percy Jackson battle a number of monsters in a labyrinth while I tidied up the kitchen, folded laundry and moped a floor. An hour later I was relaxing on the couch with my new John Irving book. An hour after that I checked blood sugars.

Kid #1 – all good.

Kid #2 – right as rain.

Kid #3 – Sugarboy – not so much, lower than he was before bed but not by much. I figured it was a stubborn high, dosed more insulin and returned to my comfy couch. Too sleepy to read I caught up on Big Bang Theory (oh that silly Sheldon), Modern Family (glad I’m not the Cam of the family), and Two and a Half Men (mmm Ashton).

At this point it is after 1am and I am fighting exhaustion myself. I check the boy. He is now higher than he was before bed. Insert a number of expletives here also insert a new infusion site. Luckily my boy did not wake up when I put a new infusion site on his backside, despite the needle that shoots through the skin to leave the flexible canula behind. When he has high blood sugars he sleeps more soundly than normal. His body is just exhausted from the additional glucose coursing through him and very likely some ketones (ketones are toxins produced when the body burns fat and fatty acids for fuel because it doesn’t have enough glucose available – the irony is the glucose is there for people with diabetes but the body is lacking the magic key (insulin) needed to use the glucose). Dose insulin. Kiss his forehead. Kiss his little hand that hugs his pillow and say a little wish that all will be well.

I set my alarm for 3am. I don’t always do a 3am check but with a new infusion site, high blood sugars and a large dose of insulin to correct a high blood sugar I do need to recheck him.

Fast forward to 6:05am when my normal alarm goes off. Great song playing ‘Demons’ by Imagine Dragons. It’s kind of a dark song but has a catchy tune and I take the lyrics as a warning not to let my demons rule my days. Sorry – digressed.

Demons – In case you don’t know the song.

As the song played on I realized I didn’t hear my 3am alarm. This is the scene where I leap from bed and down the hall in less than a blink of an eye. Crash into the boys room and pause for a half second to watch his chest rise and fall. He is alive. I didn’t overdose him with insulin. (Just FYI – I am not the only parent who watches for the rise and fall of a child’s chest when the child has Type 1 diabetes – trust me on that.)

I check his blood sugar. Insert more expletives. His blood sugar 468. He wakes up, tells me his head hurts, tells me his chest hurts, tells me his stomach hurts. Then he goes potty – you know that scene in Austin Powers  – the Wiz – yea it was like that.

Don’t know the scene – click here >>> The Wiz

I tell him about the late night highs and the new infusion site. I tell him it likely failed.

He took the one I put in at 1am off – thankfully without much complaint. Sometimes those suckers stick on pretty good and removing them can be as uncomfortable as getting a new one.

The reason the new site and correction dose of insulin at 1am didn’t work.

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Friggen snorks. Shakes fist in air.

The infusion set I put in at 1am didn’t take. The canula (flexible tube that stays under his skin) bent and therefore was not infusing insulin into his body. We here in the diabetes world call that a snork. (remember the cartoon with odd sea creatures with the bent snork on their heads – google it if you don’t and don’t be fooled by their cuteness – they are pesky little a**holes).

Put on a new infusion set and dosed insulin. Checked ketones – LARGE. He ate toast and a yogurt (yes he was high but the only way to clear ketones is to eat carbs, dose insulin and drink lots and lots of water).

His blood sugar at 9am – 270. He was going down which meant the new infusion site was working. Still had a long way to go plus he still had moderate ketones.

He stayed home from school. It wouldn’t have been safe to send him to school with a severe high blood sugar, large ketones and a wallop of an insulin dose. Not to mention he felt miserable.

It’s eleven now. His sugars are down to 180. Ketones are small. He is still home playing xbox and relaxing. I’ll let him veg the rest of the day – he’s earned it.

Meanwhile I was writing this in an attempt to clear my head and keep the demons (anger, frustration, fear) at bay. I like it better when I don’t have much to say. Take time to hug a diabetic today.

PS. was not my intention to rhyme so much – clearly I’m feeling lyrical.

No D Day

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Today I finally went to the CA DMV and applied for a CA drivers license. Luckily I made an appointment so my time at the DMV was only 1.5 hours. I had to prove who I was, get my picture taken and take a written test.

There were 36 questions on the test. I was allowed to get 6 wrong to still pass. I got 3 wrong. Two of the ones I got wrong were because of the words “not” and “except” which messed me up. Read test questions carefully people to avoid looking like a maroon.

I missed the question about when it is legal to drive with parking lights on because I was thinking they meant fog lights vs. what I call hazard lights. oops.

Also did you know it is illegal to smoke in a car if there are persons under 18 in the car. Thats cool – glad its a law. I guessed on that btw – I didn’t know they made it a law.

Folks that didn’t make an appointment had to wait at least 4 hours – sucks to be them. Sadly one of them was a man dressed in military fatigues – I think anyone serving in the military that arrives in uniform without an appointment should get to skip the others. IMHO

Getting my CA license was kind of a big deal for me. I’ve been in Cali for over a year now. Aside from the fact that I loved the picture on my TX license and didn’t want to take a new picture, another reason I had avoided getting a CA license is because truly it was the last step in leaving TX behind.

During my first 3 months here in Cali I spent many days in tears or close to them. The sadness lessoned a bit more with each passing month over the last year but I struggled often in that year. I missed (still miss) my friends, my kids schools and the home I had built with my family. I still really miss my island. What my middle son called the “world’. It was the command center of our home in TX. It is where homework was done, cookies were rolled out, eggs were dyed, meals were prepared, friends gathered, and BUNCO buffets were enjoyed.  Our kitchen here isn’t large enough for an island and thus my husband is unable to give me the “world”. Alas – it is not the end of the world. We will find a new place to build memories.

While waiting at the DMV I spent time remembering my friends in TX. I have stayed in contact with many of my TX friends. Some I talk to weekly, others less often, many only in Social Media. Time and distance will not diminish the love I have for my friends. There truly are people that come into our lives and change us. Many make us want to be better people because they inspire us, help us see the beauty around us, let us laugh and learn from their mistakes as well as our own, stay close when we need them, and give us space when we need that too.

The truest friends will never leave us despite distance, time, difficult times, or differing opinions. They will build us up when we are at our lowest and stand by us when we fall. I likely looked like a real goof siting at the DMV smiling to myself thinking of my friends back in TX as well as many new friends here in Cali. I realized having a Grizzly Bear on my drivers license doesn’t mean I have left TX behind after all – TX and all the beautiful people that made my life so wonderful are with me in my heart.

Oh another thing I will have on my drivers license – a pink dot. A pink dot that identifies me as an organ donor. Thinking of our own mortality is not easy but thinking of the mortality of another that could be saved because of a pink dot is EASY.

Today is a No Diabetes Day. There are more things in Heaven and Earth, Horatio, than a chronic autoimmune disease.